Share on FacebookNeev and Nelly Kolestein, conjoined twins from Amsterdam, are celebrating their 18th birthday—a milestone no one expected. Born in Suriname, South America, and joined at the back of their heads, the twins have surpassed all medical predictions and continue to inspire with their resilience.
A Rare and Complex Condition
As Craniopagus twins, Neev and Nelly share a rare connection. Though their bodies and brains are separate, they are joined by a vital artery, making surgical separation impossible. Doctors initially believed the girls wouldn’t survive infancy and, at best, might only live to age ten. But their survival has defied these grim forecasts.
Adapting to Life Together
Growing up conjoined has meant unique challenges for Neev and Nelly. They’ve learned to coordinate daily movements and rely on mirrors to see each other. “We’ve never known life any other way,” Neev said. Despite their physical connection, the twins maintain their independence. “We have our own thoughts and personalities,” Nelly added.
Family Support and Overcoming Stigma
The twins’ journey hasn’t been easy. In their early years, they faced harsh judgment in their home country, where some viewed their condition as a curse. Seeking better care, their family relocated to the Netherlands, where specialists could monitor their health.
The family worked hard to shield the girls from public scrutiny. Older sister Rosianne explained, “People would stare or ask cruel questions, like why our parents didn’t terminate the pregnancy. It was painful, but we’ve always protected them.”
Raising Awareness and Finding Confidence
In recent years, Neev and Nelly have embraced their platform to raise awareness about their condition. Through their YouTube channel and Instagram, they share their lives and challenge misconceptions. “We want people to see us as more than just ‘the girls with a disability,’” Neev said. Their confidence has grown, and they’re determined to make their mark on the world.
Looking to the Future
With no defined life expectancy, the twins focus on living each day to the fullest. They’re currently in school and exploring their interests while continuing to inspire others with their courage and positivity.
“We wouldn’t want to be separated, even if it were possible,” Nelly said. “This is our life, and we’re happy as we are. Health and happiness are what matter most.”
